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1.
BMC Womens Health ; 23(1): 616, 2023 11 17.
Artigo em Inglês | MEDLINE | ID: mdl-37978490

RESUMO

OBJECTIVES: To assess psychometric properties of two scales developed to measure the quality of person-centered care during pregnancy and childbirth in the United States-the Person-Centered Prenatal Care (PCPC-US) and Person-Centered Maternity Care (PCMC-US) scales-in a low-income predominantly Latinx population in California. METHODS: Data were collected from July 2020 to June 2023 from surveys of low-income pregnant and birthing people in Fresno, California, participating in the "Engaging Mothers and Babies; Reimagining Antenatal Care for Everyone" (EMBRACE) trial. Research staff administered the 26-item PCPC-US scale at 30-34 weeks' gestation (n = 315) and the 35-item PCMC-US scale at 10-14 weeks after birth (n = 286), using the language preferred by the participant (English or Spanish). We assessed construct, criterion, and known group validity and internal consistency of the scales. RESULTS: 78% of respondents identified as Latinx. Factor analysis identified one dominant factor for each scale that accounted for over 60% of the cumulative variance, with most items loading at > 0.3. The items also loaded adequately on sub-scales for "dignity and respect," "communication and autonomy," and "responsive and supportive care." Cronbach's alpha for the full scales were > 0.9 and between 0.70 and 0.87 for the sub-scales. Summative scores range from 0 to 100, with higher scores indicating higher person-centered care. Correlations with scores on scales measuring prenatal care quality and birth experience provided evidence for criterion validity, while associations with known predictors provided evidence for known-group validity. CONCLUSIONS: The PCPC-US and PCMC-US scales, which were developed using a community-engaged process and found to have good psychometric properties in a largely high-income sample of Black women, were shown to also have good psychometric properties in a sample of low-income primarily Latinx women. Both scales provide valid and reliable tools to measure person-centered care experiences among minoritized communities to support efforts to reduce existing birth inequities.


Assuntos
Serviços de Saúde Materna , Obstetrícia , Assistência Centrada no Paciente , Feminino , Humanos , Gravidez , California , Hispânico ou Latino , Psicometria , Reprodutibilidade dos Testes , Inquéritos e Questionários
2.
Prev Chronic Dis ; 20: E69, 2023 08 10.
Artigo em Inglês | MEDLINE | ID: mdl-37562068

RESUMO

INTRODUCTION: Comprehensive cancer control (CCC) plans are state-level blueprints that identify regional cancer priorities and health equity strategies. Coalitions are encouraged to engage with community members, advocacy groups, people representing multiple sectors, and working partners throughout the development process. We describe the community and legislative engagement strategy developed and implemented during 2020-2022 for the 2022-2027 Illinois CCC plan. METHODS: The engagement strategies were grounded in theory and evidence-based tools and resources. It was developed and implemented by coalition members representing the state health department and an academic partner, with feedback from the larger coalition. The strategy included a statewide town hall, 8 focus groups, and raising awareness of the plan among state policy makers. RESULTS: A total of 112 people participated in the town hall and focus groups, including 40 (36%) cancer survivors, 31 (28%) cancer caregivers, and 18 (16%) Latino and 26 (23%) African American residents. Fourteen of 53 (26%) focus group participants identified as rural. Participants identified drivers of cancer disparities (eg, lack of a comprehensive health insurance system, discrimination, transportation access) and funding and policy priorities. Illinois House Resolution 0675, the Illinois Cancer Control Plan, was passed in March 2022. CONCLUSION: The expertise and voices of community members affected by cancer can be documented and reflected in CCC plans. CCC plans can be brought to the attention of policy makers. Other coalitions working on state plans may consider replicating our strategy. Ultimately, CCC plans should reflect health equity principles and prioritize eliminating cancer disparities.


Assuntos
Atenção à Saúde , Equidade em Saúde , Neoplasias , Saúde Pública , Humanos , Negro ou Afro-Americano/estatística & dados numéricos , Atenção à Saúde/etnologia , Atenção à Saúde/normas , Atenção à Saúde/estatística & dados numéricos , Illinois/epidemiologia , Neoplasias/epidemiologia , Neoplasias/etnologia , Neoplasias/prevenção & controle , Neoplasias/terapia , Hispânico ou Latino/estatística & dados numéricos , Desigualdades de Saúde , Equidade em Saúde/normas , Equidade em Saúde/estatística & dados numéricos
3.
Matern Child Health J ; 26(12): 2517-2525, 2022 Dec.
Artigo em Inglês | MEDLINE | ID: mdl-36348213

RESUMO

BACKGROUND: Preterm birth, defined as birth at gestational age before 37 weeks, is a major public health concern with marked racial disparities driven by underlying structural and social determinants of health. To achieve population-level reductions in preterm birth and to reduce racial inequities, the University of California, San Francisco's California Preterm Birth Initiative catalyzed two cross-sector coalitions in San Francisco and Fresno using the Collective Impact (CI) approach. PURPOSE: The purpose of this study is to compare two preterm birth-focused CI efforts and identify common themes and lessons learned. METHODS: Researchers conducted in-depth interviews (n = 19) and three focus groups (n = 20) with stakeholders to assess factors related to collaboration. Transcripts were coded and analyzed using modified grounded theory. Findings were compared by year of data collection (first and second cycle in each location) and geographic location (Fresno and San Francisco) and discussed with CI participants for input. RESULTS: Although both communities adopted the core tenets of CI to address preterm birth and racial inequities, each employed distinct organizational structures, strategic frameworks, and interventions. Common themes emerged around the importance of authentic community engagement, transparency in the process of prioritization and decision-making, addressing racism as a root cause of disparities in birth outcomes, and candid communication among partners. CONCLUSION: Future CI efforts, particularly those catalyzed by academic institutions, should ensure community members are active partners in program development and decision-making. CI efforts focused on combatting racial health inequities should center racism as a root cause and build capacity among coalition partners.


Assuntos
Nascimento Prematuro , Racismo , Feminino , Recém-Nascido , Humanos , Lactente , Grupos Raciais , Grupos Focais , São Francisco
4.
MedEdPORTAL ; 17: 11072, 2021 01 07.
Artigo em Inglês | MEDLINE | ID: mdl-33473382

RESUMO

Introduction: Individuals who identify as lesbian, gay, bisexual, transgender, or queer (LGBTQ) face significant health disparities and barriers to accessing care. Patients have reported provider lack of knowledge as one of the key barriers to culturally responsive, clinically competent care. Many US and Canadian medical schools still offer few curricular hours dedicated to LGBTQ-related topics, and medical students continue to feel unprepared to care for LGBTQ patients. Methods: We developed a 10-hour LGBTQ health curriculum for preclinical medical and physician assistant students. The curriculum included lectures and case-based small-group discussions covering LGBTQ terminology, inclusive sexual history taking, primary care and health maintenance, and transition-related care. It also included a panel discussion with LGBTQ community members and a small-group practice session with standardized patients. Students were surveyed before and after completing the curriculum to assess for increases in confidence and knowledge related to LGBTQ-specific care. Results: Forty first- and second-year medical students completed the sessions and provided valid responses on pre- and postcourse surveys. Nearly all students initially felt unprepared to sensitively elicit information, summarize special health needs and primary care recommendations, and identify community resources for LGBTQ individuals. There was significant improvement in students' confidence in meeting these objectives after completion of the five sessions. Knowledge of LGBTQ health issues increased minimally, but there was a significant increase in knowledge of LGBTQ-related terminology. Discussion: Our 10-hour LGBTQ health curriculum was effective at improving medical students' self-confidence in working with LGBTQ patients but was less effective at increasing LGBTQ-related medical knowledge.


Assuntos
Minorias Sexuais e de Gênero , Estudantes de Medicina , Canadá , Currículo , Feminino , Ocupações em Saúde , Humanos
5.
J Clin Transl Sci ; 4(1): 53-60, 2020 Feb.
Artigo em Inglês | MEDLINE | ID: mdl-32257411

RESUMO

INTRODUCTION: The purpose of this article is to describe the process of developing and implementing a transdisciplinary community-based research center, the Center for Health Equity Research (CHER) Chicago, to offer a model for designing and implementing research centers that aim to address structural causes of health inequality. METHODS: Scholars from diverse backgrounds and disciplines formed a multidisciplinary team for the Center and adopted the structural violence framework as the organizing conceptual model. All Center activities were based on community partnership. The Center activities were organized within three cores: administrative, investigator development, and community engagement and dissemination cores. The key activities during the first year were to develop a pilot grant program for early-stage investigators (ESIs) and to establish community partnership mechanisms. RESULTS: CHER provided more than 60 consultations for ESIs, which resulted in 31 pilot applications over the three application cycles. Over 200 academic and community partners attended the community symposium and discussed community priority. Some challenges encountered were to improve communication among investigators, to clarify roles and responsibilities of the three cores, and to build consensus on the definition and operationalization of the concept of structural violence. CONCLUSION: There is an increasing need for local hubs to facilitate transdisciplinary collaboration and community engagement to effectively address health inequity. Building consensus around a shared vision among partners is a difficult and yet important step toward achieving equity.

6.
Artigo em Inglês | MEDLINE | ID: mdl-31378727

RESUMO

BACKGROUND: Addressing cancer health disparities requires a multitiered, comprehensive approach. The Chicago Cancer Health Equity Collaborative (ChicagoCHEC) was established as a tri-institutional partnership to advance cancer health equity through scientific discovery, education, and community engagement. OBJECTIVES: Large-scale partnerships rarely document the challenges encountered when establishing processes and operations in the formative years of engagement. We outline selected lessons learned from the first three years of ChicagoCHEC in hopes that future collaborations may be better poised to hit the ground running and create the needed infrastructure for a strong, effective, and sustainable partnership. LESSONS LEARNED: Unifying a diverse group of stakeholders under a shared mission is imperative. A shared governance structure, in which all individuals understand the aims of partnership and can facilitate progress, is crucial for success. Ongoing monitoring of collaborative processes should occur and attention should be given to the optimization of communications. CONCLUSIONS: Large-scale collaborative research and education projects across institutions can be challenging, particularly when establishing a working infrastructure and aligning priorities. However, the benefit of establishing key processes in the early years of the collaborative process can lead to high-quality research output, impact, and a sustainable partnership.


Assuntos
Pesquisa Biomédica/organização & administração , Institutos de Câncer/organização & administração , Diversidade Cultural , Ocupações em Saúde/educação , Relações Interinstitucionais , Fortalecimento Institucional/organização & administração , Chicago , Participação da Comunidade , Relações Comunidade-Instituição , Comportamento Cooperativo , Humanos , Grupos Minoritários
7.
Prog Community Health Partnersh ; 13(5): 21-37, 2019.
Artigo em Inglês | MEDLINE | ID: mdl-31378729

RESUMO

BACKGROUND: In 2015, Chicago Cancer Health Equity Collaborative (ChicagoCHEC) was formed to address cancer inequities. The Community Engagement Core (CEC) is one of the key components aimed at establishing meaningful partnerships between the academic institutions and the community. Herein, we describe ChicagoCHEC CEC processes, challenges, opportunities, successes, and preliminary evaluation results. METHODS: CEC stresses participatory and empowerment approaches in all aspects of ChicagoCHEC work. Evaluation processes were conducted to assess, report back, and respond to community needs and to evaluate the strength of the partnership. RESULTS: CEC has facilitated meaningful community integration and involvement in all ChicagoCHEC work. The partnership resulted in annual cancer symposium; more than 50 outreach and education activities, including cancer screening and referrals; the development of health resources; and providing expertise in culturally and health literacy appropriate research targeting minorities. Preliminary partnership evaluation results show that ChicagoCHEC researchers and community partners have developed trust and cohesiveness and value the community benefits resulting from the partnership. CONCLUSIONS: CEC is essential in achieving research objectives following community participatory action research (CPAR) approaches. Some key lessons learned include 1) the need for clear, honest, and open channels of communication not only among the three participating academic institutions, but also among the community partners, 2) transparent operational processes, and 3) mutual trust and understanding regarding the different cultures, structure, foci and processes, expectations at each institution and partnering organization.


Assuntos
Pesquisa Biomédica/organização & administração , Institutos de Câncer/organização & administração , Relações Comunidade-Instituição , Diversidade Cultural , Equidade em Saúde/organização & administração , Fortalecimento Institucional/organização & administração , Chicago , Participação da Comunidade , Comportamento Cooperativo , Detecção Precoce de Câncer , Educação em Saúde/organização & administração , Ocupações em Saúde/educação , Humanos , Grupos Minoritários , Pobreza , Universidades
8.
J Ambul Care Manage ; 38(3): 236-43, 2015.
Artigo em Inglês | MEDLINE | ID: mdl-26049653

RESUMO

This article contextualizes the need for Illinois House Bill 5412 (HB5412), which calls for the establishment of a state board to create recommendations for the community health worker (CHW) field in Illinois, including a scope of practice, core competencies, training and certification standards, and sustainable funding and reimbursement mechanisms. Multisectorial partnerships and their outputs, coupled with frontline CHW interventions, created a synergistic climate conducive to the passing of this historic CHW legislation. This article provides a timeline and recipe for legislative success as described through processes and activities collaboratively undertaken, concentrating on a 5-year period (2009-2014).


Assuntos
Agentes Comunitários de Saúde/legislação & jurisprudência , Certificação , Agentes Comunitários de Saúde/economia , Agentes Comunitários de Saúde/educação , Humanos , Illinois , Competência Profissional , Papel Profissional , Mecanismo de Reembolso , Governo Estadual
9.
RGO (Porto Alegre) ; 61(4): 549-556, jul.-dez. 2013. tab
Artigo em Inglês | LILACS-Express | LILACS | ID: lil-704920

RESUMO

Objective: To estimate the per capita cost of fluoridating the municipal water supply of Sorocaba in 2009 and describe the costs from 1989 to 2008. Methods: Sorocaba?s Autonomous Water and Wastewater Service disclosed the initial capital required for implementing the water fluoridation system and the costs associated with the purchase of chemicals, system operation, and control of fluoride concentration. These numbers were added and divided by the municipal population with piped water. Results: In 2009 the per capita cost was R$ 1.43 (US$ 0.72), and from 1989 to 2008 the estimated per capita cost ranged from R$ 1.19 to R$ 1.43(US$ 0.59 to 0.72). Conclusion: The per capita cost of water fluoridation is low, and when the fluoride concentration is kept at the recommended levels, it is an efficient, simple, and safe public policy for preventing dental caries. Knowing its cost allows comparisons and encourages its implementation.


Objetivo: Estimar o custo per capita da fluoretação das águas de abastecimento público para o município de Sorocaba, em 2009 e descrever seus custos financeiros de 1989 a 2008. Métodos: Foi realizada uma pesquisa junto ao Serviço Autônomo de Água e Esgoto de Sorocaba e os dados sobre custos do capital inicial de instalação,do produto químico, da operacionalização do sistema e do controle dos teores de fluoreto foram obtidos, calculados e divididos pelo númerode habitantes abastecidos por água no município. Resultados: a) O custo per capita foi de R$ 1, 43 (US$ 0,72) em 2009 e b) no período de 1989 a 2008, a estimativa do custo per capita variou de R$ 1,19 a R$ 1,43 (US$ 0,59 a 0,72). Conclusão: O custo per capita da fluoretação da água é baixo, comprovando que, quando praticada com os níveis de fluoreto recomendados, torna-se uma medida de saúde pública eficiente, simples e segura para a prevenção da cárie dentária. Estimar seu custo é importante para efeito de comparação e incentivo a sua implementação para outros municípios.

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